Sickle cell disease or sickle cell disorder (SCD) is the most common single-gene condition in England. Around 15,000 people live with SCD in England. The sickle cell gene is more common in areas of the world that either are, or used to be, malarial. SCD is an inherited, life-long condition. People with SCD experience severe acute pain, chronic pain, chronic anaemia and fatigue. They may also develop long-term organ damage. SCD is very variable both between different people and within the same person over time.
The aim of the project was to co-produce evidence, working together with people living with SCD of: 1) barriers to employment and 2) enablers to employment. The project was funded from January 2018 to January 2020. The project produced a Guide to Sickle Cell and Employment:
The project was led by the experiences of voluntary organizations for people with SCD:
OSCAR Sandwell Organization for Sickle Cell Anaemia Research & Thalassaemia Support